Even in this...

Billy and I escaped for a couple of days for our anniversary. It was pretty funny. At check in, the clerk asked what we were gonna do. We just looked at each other and said, "Sleep!" We are getting so old!!!

It was so lovely to just sit quietly. That just never happens at home. Someone asked me if I would be able to detach from all home. Interesting question. I really didn't know how to answer that. On the one hand, it was really nice to just escape for a while and not have to constantly deal with all of it. On the other hand, it's always there in the back of your mind, wondering if Will is taking his meds, or is he taking the opportunity to eat what he wants regardless of the consequences. The fact that Will has mitochondrial disease never leaves your conscious thought because everything impacts it. Is he getting to bed on time? Is he pushing his siblings around because he's just mad and doesn't want to make the right choices? Is he saying he took his meds when he really isn't? It's like you are forever vigilant to protect him from external circumstances as well as from himself, helping him come to grips with the fact that this isn't going to go away and the choices he makes right now affect him in an hour or in a day...and he does not want to accept that.

So, upon arrival home, it was discovered that indeed, he isn't feeling all that great. He did not take his meds despite telling his brother he did. He ate what he knew he shouldn't because he wanted what he shouldn't have (don't we all????). And he is paying for his choices. Unfortunately, we all get to pay for his choices.

It doesn't help that he really doesn't want this port installed and that is looming. Next Friday (Dec 4) is the set date. It's the right answer. It took three sticks on Friday to get a vein for his IV. This will eliminate the majority of the discomfort as well as protect the remaining available IV sites. But it also means the third surgery this year. Three times under general in one calendar year...

Even in this, we are thankful that William is still able to be challenging, because that means that he's still quite functional. :) We can also be grateful that the kids were willing to manage the household without us for a few days while we spent some time remembering why in the world we got married in the first place. :) We can also be thankful that we have a sovereign Lord who loves us and wants what is best for us even when we fail to understand how our current situation could possibly fit into that category.